THE INTERNATIONAL ALLIANCE OF ALS/MND ASSOCIATIONS

Company number 03739783

78 officers / 66 resignations

AQUINO, Pablo Agustin, Mr.

• Correspondence address: 348 Luis Drago Pisa 4 Dto 15, Buenos Aires, Argentina
• Role (Active): Director
• Date of birth: February 1973
• Appointed on: 29 November 2025
• Nationality: Argentine
• Country of residence: Argentina
• Identity verification status: Verification requirements complete

BARAKZAI, Nina Riffath, Ms.

• Correspondence address: 43 Veembroederhof, Amsterdam, Netherlands
• Role (Active): Director
• Date of birth: October 1961
• Appointed on: 29 November 2025
• Nationality: British
• Country of residence: Netherlands
• Identity verification status: Verification requirements complete

BEDFORD, Jennifer

• Correspondence address: 4 The Crescent, Harlow, Essex, England, CM17 0HN
• Role (Active): Director
• Date of birth: February 1971
• Appointed on: 31 December 2024
• Nationality: English
• Country of residence: England
• Identity verification due: 31 March 2026

BENCH, Mary Ellen

• Correspondence address: 190 190 Rykert Street, St.Catharines, Ontario, Canada
• Role (Active): Director
• Date of birth: July 1957
• Appointed on: 1 January 2025
• Nationality: Canadian
• Country of residence: Canada
• Identity verification due: 31 March 2026

GERBINO, Valeria, Ms.

• Correspondence address: 45 Via Antonino Pagliaro, Rome, Italy
• Role (Active): Director
• Date of birth: October 1985
• Appointed on: 29 November 2025
• Nationality: Italian
• Country of residence: Italy
• Identity verification status: Verification requirements complete

HJELLE, Jennifer Helen, Ms.

• Correspondence address: 801 Washington Avenue North, #119, Minneapolis, Minnesota, United States
• Role (Active): Director
• Date of birth: August 1977
• Appointed on: 29 November 2025
• Nationality: American
• Country of residence: United States
• Identity verification status: Verification requirements complete

MOORE, Tammy Lynn

• Correspondence address: 134 Roxborough Street West, Toronto, Ontario, Canada
• Role (Active): Director
• Date of birth: August 1970
• Appointed on: 1 December 2023
• Nationality: Canadian
• Country of residence: Canada
• Identity verification due: 31 March 2026

REVIERS, Evy

• Correspondence address: 7 3440 Zoutleeuw, Walgang, Belgium, Belgium
• Role (Active): Director
• Date of birth: September 1987
• Appointed on: 1 January 2025
• Nationality: Belgian
• Country of residence: Belgium
• Identity verification due: 31 March 2026

SANTOS, Marcela

• Correspondence address: Cr 16 #102 58, Apartment 204, Bogotá Dc, Colombia
• Role (Active): Director
• Date of birth: November 1989
• Appointed on: 19 November 2020
• Nationality: Colombian
• Country of residence: Colombia
• Identity verification due: 31 March 2026

SULLIVAN, Clare

• Correspondence address: 9 9 Brough Place, Chapman Act, Australia
• Role (Active): Director
• Date of birth: April 1981
• Appointed on: 1 January 2025
• Nationality: Australian
• Country of residence: Australia
• Identity verification due: 31 March 2026

YAMADA, Yohei

• Correspondence address: 17-20, Heiwadori 9chome Kita, Shiroishi-Ku, Sapporo, 003-0029, Japan
• Role (Active): Director
• Date of birth: July 1977
• Appointed on: 29 November 2022
• Nationality: Japanese
• Country of residence: Japan
• Identity verification due: 31 March 2026

ZUCCARINO, Riccardo

• Correspondence address: 21 Viale Trento 21, Levico Terme, Italy
• Role (Active): Director
• Date of birth: March 1976
• Appointed on: 1 January 2025
• Nationality: Italian
• Country of residence: Italy
• Identity verification due: 31 March 2026

CORBETT, Donna Suzanne

• Correspondence address: David Niven House, 10-15 Notre Dame Mews, Northampton, NN1 2BG
• Role (Resigned): Secretary
• Appointed on: 1 August 2011
• Resigned on: 16 November 2011

KIRKPATRICK, Philip Duncan John

• Correspondence address: 93 Palatine Road, London, N16 8SY
• Role (Resigned): Secretary
• Appointed on: 24 March 1999
• Resigned on: 29 March 1999
• Nationality: British

MOLES, Rachel Marie Patterson, Ms.

• Correspondence address: David Niven House, 10-15 Notre Dame Mews, Northampton, NN1 2BG
• Role (Resigned): Secretary
• Appointed on: 12 October 2012
• Resigned on: 10 December 2018

WATKINS, Malcolm Geoffrey

• Correspondence address: Griffin House, Newland Street, Braybrooke, Market Harborough, Leicestershire, United Kingdom, LE16 8LW
• Role (Resigned): Secretary
• Appointed on: 29 March 1999
• Resigned on: 29 July 2011
• Nationality: British

ABRAMS, Wendy

• Correspondence address: Les Turner Als Foundation, 5550 W Touhy Avenue, Suite 202, Skokie, Il, Usa, 60077
• Role (Resigned): Director
• Date of birth: August 1941
• Appointed on: 5 March 2013
• Resigned on: 3 December 2013
• Nationality: American
• Country of residence: Il, Usa

ABRAMS, Wendy

• Correspondence address: 940 Augusta Way 302, Highland Park, 60035 Illinos, Usa
• Role (Resigned): Director
• Date of birth: August 1941
• Appointed on: 29 March 1999
• Resigned on: 30 November 2004
• Nationality: American

ALEXANDER, Con

• Correspondence address: 9 Kelross Road, London, N5 2QS
• Role (Resigned): Director
• Date of birth: December 1965
• Appointed on: 24 March 1999
• Resigned on: 29 March 1999
• Nationality: British

ALI, David Imam, Mr.

• Correspondence address: Francis Crick House, 6 Summerhouse Road, Moulton Park, Northampton, England, NN3 6BJ
• Role (Resigned): Director
• Date of birth: June 1959
• Appointed on: 5 December 2017
• Resigned on: 1 December 2023
• Nationality: Australian
• Country of residence: Australia

AQUINO, Pablo Agustin

• Correspondence address: 687 Av Belgrano Piso 8 Oficina 33, (1092) Ciudad Autónoma, Buenos Aires, Argentina
• Role (Resigned): Director
• Date of birth: February 1973
• Appointed on: 1 January 2019
• Resigned on: 31 December 2024
• Nationality: Argentine
• Country of residence: Argentina

BALAS, Calaneet Hadassah

• Correspondence address: Francis Crick House, 6 Summerhouse Road, Moulton Park, Northampton, England, NN3 6BJ
• Role (Resigned): Director
• Date of birth: June 1975
• Appointed on: 5 December 2017
• Resigned on: 29 November 2025
• Nationality: American
• Country of residence: United States
• Identity verification due: 31 March 2026

BELL, Steven Richard

• Correspondence address: 10-15 (Mnd Association), Notre Dame Mews, Northampton, Northamptonshire, England, NN1 2PR
• Role (Resigned): Director
• Date of birth: May 1959
• Appointed on: 8 December 2010
• Resigned on: 10 December 2018
• Nationality: British
• Country of residence: England

BESTOW, Robert

• Correspondence address: David Niven House, 10-15 Notre Dame Mews, Northampton, NN1 2BG
• Role (Resigned): Director
• Date of birth: September 1956
• Appointed on: 27 November 2011
• Resigned on: 5 December 2017
• Nationality: British
• Country of residence: Scotland

BIRKS, Carol Elizabeth

• Correspondence address: Building 4, Old Gladesville Hospital, Victoria Road, Gladesville, Nsw 2111, Australia
• Role (Resigned): Director
• Date of birth: December 1956
• Appointed on: 8 December 2010
• Resigned on: 5 December 2017
• Nationality: Australian
• Country of residence: Australia

BLAKE, Andrew Julian

• Correspondence address: 2 Hengrave Road, London, SE23 3NW
• Role (Resigned): Director
• Date of birth: April 1964
• Appointed on: 24 March 1999
• Resigned on: 29 March 1999
• Nationality: British
• Country of residence: England

BLONK, Gorrit-Jan

• Correspondence address: Als Netherlands, Koninginnegracht 7, 2514 Aa Den Haag, Netherlands
• Role (Resigned): Director
• Date of birth: August 1966
• Appointed on: 8 December 2015
• Resigned on: 10 November 2021
• Nationality: Dutch
• Country of residence: Netherlands

BONGIOANNI, Paolo, Prof

• Correspondence address: Via Liguria 25 - 56127, Pisa, Italy
• Role (Resigned): Director
• Date of birth: October 1963
• Appointed on: 27 November 2006
• Resigned on: 31 October 2008
• Nationality: Italian

BONGIOANNI, Paolo, Prof

• Correspondence address: Via Liguria 25 - 56127, Pisa, Italy
• Role (Resigned): Director
• Date of birth: October 1963
• Appointed on: 1 December 2000
• Resigned on: 5 December 2005
• Nationality: Italian

CAMERON, David

• Correspondence address: 58a Poulette St, Toronto, Ontario, M5a 1z5, Canada
• Role (Resigned): Director
• Date of birth: January 1947
• Appointed on: 5 December 2005
• Resigned on: 1 August 2011
• Nationality: Canadian
• Country of residence: Canada

CARMI, Efrat, Mrs.

• Correspondence address: PO Box 55075, Israls, 13 Aba Hushi Street, Haifa, Israel, 34980
• Role (Resigned): Director
• Date of birth: May 1966
• Appointed on: 1 December 2012
• Resigned on: 10 December 2018
• Nationality: Israeli
• Country of residence: Israel

CATTANI, Monica, Dr

• Correspondence address: Via Clefi 9, Milano, 20146, Italy
• Role (Resigned): Director
• Date of birth: October 1966
• Appointed on: 18 November 2008
• Resigned on: 5 December 2010
• Nationality: Italian
• Country of residence: Italy

CODINI, Mauro

• Correspondence address: Bagnolini 5, Novara, Italy, 28100
• Role (Resigned): Director
• Date of birth: October 1946
• Appointed on: 12 November 1999
• Resigned on: 4 August 2000
• Nationality: Italian

DAVID, Lindee Ellen

• Correspondence address: Als Canada, 3000 Steeles Avenue East, Suite 200, Markham, Ontario L3r 4t9, Canada
• Role (Resigned): Director
• Date of birth: April 1956
• Appointed on: 3 December 2013
• Resigned on: 16 June 2014
• Nationality: Canadian
• Country of residence: Canada

DEITCH, Jeffrey, Dr

• Correspondence address: 422 N Jackson St, Media, 19063 Pennysylvania, Usa
• Role (Resigned): Director
• Date of birth: September 1957
• Appointed on: 10 November 2008
• Resigned on: 5 April 2013
• Nationality: Usa
• Country of residence: Usa

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